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But Lara Bloom, international executive director of the Ehlers-Danlos Society, said that although Van der Veen's tissue might be more 'lax' if she had the disorder, she does not 'think it would be appropriate for someone to say that...it is not part of the diagnostic criteria.' About one in every 5,000 people around the world has some form of EDS
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She was given a dose of steroids, but despite the vet's efforts she died the next day from heart and lung failure caused by nicotine poisoning
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